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About the NJR Patient Network

About the NJR Patient Network

The NJR Patient Network has been established since April 2012 and has been growing over recent months to include joint replacement patients from across England, Wales, Northern Ireland and the Isle of Man.

What does the Network do?

Our Network members participate in the drafting of NJR publications and share their views and opinions on projects and proposals. We value all the contributions of our members who help to make sure the registry is keeping the patient view at its heart.

How does the Network communicate?

We use email as the primary form of contact but we are more than happy to post correspondence to any patients who would prefer paper copies. We have held two focus groups since 2012, one on the NJR’s Public and Patient Guide and one on a pilot online patient information service which is still in development.

Expenses can be paid for any travel or subsistence costs incurred travelling to meetings or events in line with our policy which can be downloaded here >

What have the Network helped us achieve?

We are very grateful to Network members who have helped us develop, improve and test the following:

Network members have also shared views on the NJR Surgeon and Hospital Profile service as well as generally looking at as how the registry is perceived by patients and how we might communicate better.

Who can join?

Any joint replacement patient who has had or is expecting to have a hip, knee, ankle, elbow or shoulder joint replacement surgery performed in England, Wales, Northern Ireland and the Isle of Man.

We politely request that members sign a non-disclaimer agreement, simply to say that any draft materials or details on pilot projects won’t be shared before they are ready to be launched officially.

Are you interested? Here’s who to contact

If you are interested in becoming a member, and can give some time to contributing to NJR publications and projects then please email james.ludley@hqip.org.uk or call 020 7997 7370.

  

  
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