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NJR Research programme

 

Public and patient overview

The National Joint Registry collects information about joint replacements of the shoulder, elbow, hip, knee, and ankle performed on patients in England, Wales, Northern Ireland and the Isle of Man. Our register has more of this type of information than any other in the world, and we aim to use it to improve the lives of patients living with joint replacement. We do this by answering questions about why patients need joint replacement, comparing different treatments and how they work, and by studying the outcomes and complications of joint diseases and their treatment.

We have a committee called the Research Committee that looks at all requests to conduct further research using the data within the registry. Our key priority throughout this further research is to protect those who have given their details to be included in the register. We also make sure that the research done is properly thought through and clearly organised and importantly, also ensure that the way the information is used meets NJR and all regulatory data protection standards, so that patients' information is always fully protected.

Scientific overview

The National Joint Registry is a uniquely powerful resource that can provide a substrate for definitive research into the full range of biological, mechanical, clinical, economic and social factors, influencing the outcome of joint replacement. The data can also help establish the impact of joint replacement surgery on the well-being of patients and the general population.The Research Committee aims to maximise the value of the registry's contribution to health care improvement by making data available for further research.

Specifically, the Research Committee:

  • Takes responsibility for the release of data for research through an impartial and objective protocol
  • Has oversight of the use and reporting of NJR data by research groups
  • Has a commitment to uphold in the standard and consistency of work that is carried out on NJR data and
  • Is responsible to the NJR Steering Committee.

Research Committee objectives

The Research Committee is working to:

  • Protect the NJR dataset and strengthen its governance through safe, effective, and efficient data management
  • Provide a single entry point and management pathway for all research proposals and activity
  • Maximise data access for researchers
  • Align research activity to a framework of priority themes
  • Promote the profile and branding of the NJR resource
  • Deliver research strategy through an expertise-based RC

Research Committee priority framework

The NJR is a resource that is made available to external researchers conducting new and clinically relevant research in patients who have received a joint replacement of the hip, knee, ankle, shoulder or elbow. This research must also meet UK legislation for data protection, governance and research ethics requirements.

Requests for access to the NJR dataset should fit within one of the following priority thematic areas:

  • Device and technology assessment
  • Patient outcomes, safety, & risk management
  • Health economics & cost effectiveness
  • Surgeon education & training
  • Patient information & shared decision-making
  • Disease diagnosis and prognosis
  • Disease causation, prevention & treatment
  • Injury or trauma in the setting of joint replacement
  • Healthy development and ageing in patients with joint disease and replacement

Research Committee membership

Member  Position 
Prof. Mark Wilkinson NJRSC public health and epidemiology member (Chairman)
Gillian Coward NJRSC patient representative member 
Mr Andy Goldberg   Expert in foot and ankle surgery  
Dr. Celia Gregson  Consultant senior lecturer in musculoskeletal medicine - University of Bristol (Contract representative) 
Mr Peter Howard  NJRSC consultant orthopaedic surgeon member 
Dr Jonathan Jeffers    Expert in mechanical engineering 
Prof. Alex MacGregor Immediate past-Chairman (ex-officio)
Prof. James Mason  Health economist  
Dr. Claire Newell  Data quality manager - Northgate Public Services (Contract representative)
Mr Martyn Porter  NJR Medical Director (NJR Medical Advisory Committee representative) 
Prof. Andrew Price NJRSC consultant orthopaedic surgeon member
Prof. Amar Rangan NJRSC consultant orthopaedic surgeon member
Mike Swanson  Principal consultant - Northgate Public Services (Contract representative)
Prof. Mike Reed NJRSC consultant orthopaedic surgeon member
Prof. Yoav-Ben Shlomo Professor of Clinical Epidemiology, University of Bristol (Contract representative)
Prof. Daniel Prieto-Alhambra  Professor of Epidemiology, University of Oxford (Contract representative)
NJR Management Team  
Elaine Young Director of Operations
Chris Boulton Associate Director of Research and Governance

 

 
Mechanical engineering 

 

Mechanical engineering 
Mechanical engineering 
  

 

  
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