Search  Search
Font Size:     Small text Medium text Large text   email pageemail pageprint pageprint page
IN THIS SITE...

NJR Research programme

 

Public and patient overview

The National Joint Registry collects information about joint replacements of the shoulder, elbow, hip, knee, and ankle performed on patients in England, Wales, Northern Ireland and the Isle of Man. Our register has more of this type of information than any other in the world, and we aim to use it to improve the lives of patients living with joint replacement. We do this by answering questions about why patients need joint replacement, comparing different treatments and how they work, and by studying the outcomes and complications of joint diseases and their treatment.

We have a committee called the Research Committee that looks at all requests to conduct further research using the data within the registry. Our key priority throughout this further research is to protect those who have given their details to be included in the register. We also make sure that the research done is properly, is well thought through and clearly organised. We ensure that the way the information is used meets NJR, and all regulatory data protection standards, so that patients' information is always fully protected.

Scientific overview

The National Joint Registry is a uniquely powerful resource that can provide a substrate for definitive research into the full range of biological, mechanical, clinical, economic and social factors, influencing the outcome of joint replacement. The data can also help establish the impact of joint replacement surgery on the well-being of patients and the general population.The Research Committee aims to maximise the value of the registry's contribution to health care improvement by making data available for further research.

Specifically, the Research Committee:

  • Takes responsibility for the release of data for research through an impartial and objective protocol
  • Has oversight of the use and reporting of NJR data by research groups
  • Has a commitment to uphold in the standard and consistency of work that is carried out on NJR data
  • Is responsible to the NJR Steering Committee.

Research Committee objectives

The Research Committee is working to:

  • Protect the NJR dataset and strengthen its governance through safe, effective, and efficient data management
  • Provide a single entry point and management pathway for all research proposals and activity
  • Maximise data access for researchers
  • Align research activity to a framework of priority themes
  • Promote the profile and branding of the NJR resource
  • Deliver research strategy through an expertise-based RC

Research Committee priority framework

The NJR is a resource that is made available to external researchers conducting new and clinically relevant research in patients who have received a joint replacement of the hip, knee, ankle, shoulder or elbow. This research must also meet UK legislation for data protection, governance and research ethics requirements.

Requests for access to the NJR dataset should fit within one of the following priority thematic areas:

  • Device and technology assessment
  • Patient outcomes, safety, & risk management
  • Health economics & cost effectiveness
  • Surgeon education & training
  • Patient information & shared decision-making
  • Disease diagnosis and prognosis
  • Disease causation, prevention & treatment
  • Injury or trauma in the setting of joint replacement
  • Healthy development and ageing in patients with joint disease and replacement

Research Committee membership

Member  Position 
Prof. Mark Wilkinson Chairman, NJRSC public health and epidemiology representative
Mr Tim Wilton NJR Medical Director
Elaine Young NJR Director of Operations
Chris Boulton NJR Deputy Director of Operations
Prof. Mike Reed NJRSC Orthopaedic surgeon member
Mr Peter Howard  NJRSC Orthopaedic surgeon member
Prof. Amar Rangan NJRSC Orthopaedic surgeon member
Prof. Andrew Price NJRSC Orthopaedic surgeon member
Gillian Coward NJRSC Patient representative 
Robin Brittain NJRSC Patient representative 
Prof. Alex MacGregor Co-opted member (past Chairman)
Prof. James Mason  Co-opted member (Health economist)  
Dr Jonathan Jeffers Expert in mechanical engineering
Jitendra Mangwani Expert in foot and ankle surgery
Dr. Claire Newell  NJR Lot 1 Contract (Data Management, Solutions and Associated Services) representative
Mike Swanson  NJR Lot 1 Contract (Data Management, Solutions and Associated Services) representative
Prof. Andrew Judge NJR Lot 2 Contract (Statistical Analysis, Support and Associated Services) representative
Prof. Daniel Prieto-Alhambra  NJR Lot 2 Contract (Statistical Analysis, Support and Associated Services) representative
Mr Michael Whitehouse NJR Lot 2 Contract (Statistical Analysis, Support and Associated Services) representative

 

 
Mechanical engineering 

 

Mechanical engineering 
Mechanical engineering 
  

 

  
Copyright © 2020 National Joint Registry Terms and conditions Privacy policy Login