A patient being escorted by a nurse, NJR patient consent, njr data opt-out, surgeon and hospital outcomes

How you can support the work of the registry

Many thousands of joint replacements take place across the UK every year. The National Joint Registry links with Hospital Episode Statistics and NHS Patient Reported Outcome Measures (PROMs) data to give hospitals and surgeons feedback about their performance outcomes to help them review and improve patient care.

As patients like you give their consent for their surgical procedure details to be captured on the registry, we are able to analyse this information and see patterns of best outcomes for future patients based on the collection of now over 3.8 million joint procedure records. We can then publish newly understood information on outcomes and research findings that equip future patients with the knowledge and understanding to join in shared decision-making conversations with their own consultants, and we do this though the publication of information on our websites and portals which you can find links for in the footers at the bottom of all our websites.

Data obtained from the NJR can also reveal if a particular brand of implant has a higher failure rate, resulting in the implant being withdrawn by the manufacturer. Had the NJR not existed, these discoveries may not have been as timely and beneficial to patient safety. As the NJR can identify patterns of failure rates with different implants, this enables surgeons to choose the most appropriate devices for patients, improving quality and reducing the occurrence of any safety issues.

 “I was really nervous before my hip replacement operation but looking at the NJR’s resources gave me lots of reassurance. I was able to check information about my consultant’s practice, the hospital where my operation was carried out, and what replacement joint I was getting. The operation has changed my life, so of course I was more than happy to give my consent for my own procedure details to be recorded on the registry.”                                                                                  A patient perspective

It is important that researchers are able to continue to access and realise the potential of health information and we now have a very valuable pool of data. Without it, progress of medical research would be seriously hampered. Research can only flourish if people can trust and understand the benefits of sharing their health information and have clarity on how it will be recorded, collected and stored.  We can provide details on this process and on how we only share information under very strict guidelines and you can also visit our privacy information here.

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