NJR In-depth Studies
The National Joint Registry (NJR) is the largest database of hip, knee, ankle, elbow and shoulder joint replacement procedures in the world and presents an unparalleled opportunity for research. Our strategy is to make data widely available to the research community to further the understanding of joint diseases and the determinants of outcome of these common procedures. We are engaged in an active research programme and welcome external requests that will maximise the research potential of this resource.
Before submitting your request
Please review the current portfolio of research approved by the NJR Research Committee. (link). The NJR Research Committee aims to avoid approval of research where there is a chance for significant overlap with approved work in progress. Requests for access to the dataset should fit within one of the priority thematic areas (See Research Committee page)
Research projects that wish to use NJR data are classified as external, independent, research projects that are supported by the NJR (NJR Supported Projects) or internal, collaborative projects (NJR Partnership Projects). Use this guidance (hyperlink) to establish whether your project is classified as external or internal before submitting your request.
If you are planning to submit a grant application that uses NJR data, an Expression of Interest (EOI) form for the project must be submitted to the NJR Research Committee and an ‘approval in principle’ response received, prior to submission of the grant application to the funding body.
Expressions of Interests are completed and submitted via the Data Access Portal https://portal.njrdap.njrcentre.org.uk/research-request
The NJR Research Committee will endeavour to respond to all EOIs within one month of receipt.
If your EOI is approved you will be invited to submit a full application and sent the relevant forms.
Full research applications are reviewed at quarterly Research Committee meetings. Please take note of the deadlines below to allow adequate time to prepare a complete submission.
|RC Meeting date
Applications will be accepted until 5pm of the submission deadline date.
Guidance in preparing a full research application
We are keen to support researchers in submitting full and complete proposals that meet legal requirements and protect patient privacy, ultimately facilitating access to data that will result in benefit to patients.
The following resources developed by Understanding Health Data Access (HQIP) will support you as you prepare to make an application:
- (Planning a Health Data Application: Questions and Information Sources)
- (An Introduction to Developing Good Data Applications)
- (The Duty of Confidentiality)
Is my project Research, Audit or Service Evaluation?
Please use the HRA decision making tool to determine if your project is classified as ‘Research’.
Cost associated with application
Please refer to NJR’s Cost Recovery Policy. Exact costs will be confirmed on receipt of a full application.
Please note that the NJR does not provide funding for research studies. However, the Gwen Fish Orthopaedic Trust has informed the NJR that it will consider applications for grants to support NJR research projects. Applicants will have to submit their proposal to the trustees for a full evaluation on a first come, first served basis. For further information, please contact Keith Tucker via email: firstname.lastname@example.org
Further funding opportunities are also available from Orthopaedic Research UK (ORUK). See https://www.oruk.org/ for details.
Completing the Data Access Request Form (DARF)
You are welcome to contact the NJR research team for guidance in completing the DARF by sending us an email to the following address: email@example.com. Example Data Flow diagrams for Section 11 of the DARF can be found here. (hyperlink)
Following Research Committee approval of your research project
The application will be assessed by Healthcare Quality Improvement Partnership (HQIP) Data Access Request Group (DARG), as Data Controller for NJR data.
Following approval from HQIP DARG, access will be granted to the data via the Data Access Portal.
Progress reports for the NJR Research Committee will be required at six monthly intervals, with a final report at project completion.
Publications are encouraged. Any paper/abstract utilising NJR data must be sent to firstname.lastname@example.org for Research Committee comment prior to submission. All outputs must follow the Standardised Acknowledgment of the National Joint Registry (NJR) guidance.